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Navigating Cancer blog directory

« Good Enough | Main | Can Better Bedside Manner Be Taught? »

January 29, 2009

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Tammy Rivers

Dr. Wendy,

I was wondering if you have any books or materials for the caregivers of lymphoma? My husband stuggles really bad with my cancer. I have SLL/CLL and have a great deal of pain and fatigue. I have tried to locate a support group for us both to attend in our area, but have come up empty handed so far. I would really appreciate any help in this area you could give to us. Thank you for this blog for those of us struggling with lymphoma.

Thank you,
Tammy

Wendy S. Harpham, MD

Dear Tammy,

Your husband's journey is inextricably linked to yours, but it is different than yours. And it can be an unpleasant and challenging road.

Thankfully, many resources are available to guide and support caregivers. Two excellent national organizations are:
National Family Caregivers Association (NFCA; www.nfcacares.org) and Well Spouse Association (WSA; www.wellspouse.org) They have online information, helpful newsletters and they may have some Internet-facilitated discussion groups and chat rooms.

You can ask his oncologist's office staff for a list of support services connected with the office and the hospital, or community-based (such as Gilda's Club or Wellness Community). If you feel he would benefit from some short-term counseling, you can ask for referral to social worker, psychologist, psychiatrist or pastoral counselor experienced in oncology (or chronic illness). It might be the best time and money you two have spent in a while.

In addition, you can check out the local Yellow Pages for support services. Look under Gilda's Club, American Cancer Society, Leukemia and Lymphoma Foundation, Lymphoma Research Foundation.

Let me know if this helps or if you need more tips.

With hope, Wendy

Tammy Rivers

Dear Dr. Wendy;

Thank you so very much for taking time out of your busy schedule to address my question. I will check into the resourses that you have provided to me. I pray blessings upon you as a survior and your mission to help others struggling with cancer. Thank you again.

Tammy

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