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« Informed Consent | Main | Fighting Cancer With Knowledge & Hope »

August 03, 2009


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Kairol Rosenthal

I think we also have to look at funding sources and where people are treated.

Peds have huge access to clinical trials because they are treated in Children's Hospitals that have huge endowments - compared to your average adult community hospital. This allows the ped hospitals themselves to pic up the tab of much of the research. In essence their is loads more private money and support for kids to participate than for adults. Just a small % of their reserach funds come from the NCI.

Only 10% of adults are treated at university teaching institutions, and often our insurance companies will not pic up the tab of costs related to clinical trials. The Kennedy-Hutchinson Bill addressed this issue. Let's hope some good political action is taken on it.

Additionally, there are a lot of misconceptions out there about clinical trials and their safety that scare patients away. I interact a lot with young adult cancer survivors - and we have the lowest participation rate of all. It is telling to hear the stories that patients relay to me about why they don't want to participate - there is a lot of misinformation out there.

Great post Wendy.



Wendy S. Harpham, MD

Yes, the fact that children are usually treated at academic medical centers (if not comprehensive cancer centers) plays a major role in why so many children are enrolled in trials.

So we need to have greater ties between adult academic centers and community centers.

And I agree: We need to do all we can to debunk myths about trials.
The Center for Information and Study on Clinical Research Participation (CISCRP) is helping in this arena.

cancer guide

Even though every one wants to be a volunteer, because of lack of knowledge very few people will be as active volunteer. my heartily thanks for each one of the volunteer those who are fighting for cancer cause.

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