Early in the article, Huff writes, "A few recent studies indicate that today's parents err on the side of disclosure."
Some readers might think, "To 'err' is a bad thing." If they read on, they'll see Huff believes that this error is a good thing. And I agree. As I've shared in When a Parent has Cancer and a few posts on this blog (5/21/10, 12/6/09, 10/21/09), my number one tip to parents with cancer has been to tell the truth, couched in love, support and hopefulness.
Exactly what to say -- and when -- is unique to each child in each family, depending on factors such as
- The typical age of onset of disease.
- The implications of that disease.
- The availability of screening measures.
- The ability to delay, prevent and treat the disease.
- The child's age and maturity.
- What else is going on in the family and in the child's life.
If interested, you can read about my personal experience with genetic risk in "Testing My Children."
Healthy Survivors obtain knowledge about when and how to share information regarding genetic risk with their children as well as how to continue to support and guide their children thereafter.