What we call ourselves impacts how we see ourselves. So I was intrigued but not surprised when I heard a new word to add to my survivorship lexicon: metavivor.
Founded by some proactive metavivors, the work of this non-profit totally volunteer organization is dedicated to raising awareness, providing support and funding research that targets the 30% or so of breast cancer patients who are or will be living with metastatic disease.
Their mission is to
• offer local support
• help people elsewhere establish support programs
• seek out speaking engagements, media opportunities, and other venues to make their voices heard
• award a MBC research grant every year
I venture to say that people who call themselves metavivors are striving to be Healthy Survivors who see themselves as living with metastatic breast cancer -- not dying from cancer.